Support for Families Affected by Neuromuscular Disabilities
Building a trusted community where deep connection, support, and shared understanding help every family thrive.
Our mission is to build and sustain a supportive community for families impacted by neuromuscular disabilities.
We achieve this by being intentionally present, deeply understanding their unique circumstances, inspiring hope, and actively helping them to adapt, propel forward, and thrive in all aspects of their everyday lives.
84%
The average divorce rate for parents of a child with a disability.
250k
People in the US are
affected by a neuromuscular disability.
1 in 12
Children have a sibling with a disability which can lead to “glass child” syndrome.
1 in 6
Children have a developmental disability. Some also with a neuromuscular disability.
We actively support families with neuromuscular disabilities
Through a range of thoughtfully planned programs and gatherings, designed for our Helix Heroes.
From Monthly Mom's Comfort & Connect gatherings and Family Dinners to dedicated Sibling Events, Family Activities, and Marriage Retreats, every event is an opportunity for intentional connection and mutual support.
We believe in the power of shared experiences and purposeful time together to empower each hero's journey.
You can be the reason families transition from surviving to thriving.
By donating, volunteering, or sponsoring an event, you actively participate in nurturing these families towards renewed hope and connecting them with the resources essential for a better future. Each act of support, big or small, makes a tangible difference.
Financial Support
Become a monthly giving partner. Your donation directly impacts families.
Give Your Time
Sign up to volunteer for a specific event or during the year.
Sponsor an Event
Sponsor a large event, quarterly family event or sibling gathering.
Take the first step to becoming an official Helix Hero!
If you have a child aged 0-25 with a neuromuscular disability, we warmly invite your family to find your place in our Helix Heroes community and attend our supportive events. We'd love to welcome your family.
Mark your calendars!
Coming soon!
Our Community Partners
